Bookends: January 2024
2 months ago
Thursday, April 2, 2009
A shout out...
I'm a big research fanatic. I spend lots of time researching and reading things that interest me. So since Max has been diagnosed, I've been puring over the internet, trying ot find out everything I can about his condition and about the upcoming surgery. A few days ago, I stumbled onto craniokids.org and have joined the support board there. The women there are remarkable, and its been amazing to read the stories of other moms and babies who have had this condition and see thier progress through surgery, treatment and beyond. So here's a shoutout to my new friends reading this blog from Craniokids! I'm glad that you're here, and glad for your support. I'll be keeping this blog updated as Max progresses through surgery next month, so feel free to check back often. And please comment so I know you're here!
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Hi, I'm new to blogging and I ran across yours on google search engine. My little girl Holly was born Jan 23 2009 and she has metopic Cranisynostosis also. It's absolutely nerve racking! She will be undergoing surgery this summer.I will pray for you and your family!!
ReplyDeleteLisa, you should come over to craniokids.org and join up. There are so many smart women over there, and its great to be able to see how the other kids are doing and how they handle surgery. Good luck with your little girl- I saw her pics and she's beautiful!
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